Love 101 (Lessons on love and forgiveness from my grandmother)

Last Sunday night, Eric and I went to visit our favourite 101-year-old, Grandma Horne. (All photos on today’s blog were taken at that visit). She is about the cutest little older lady ever.

 

When I was a child she continuously invested in my life in tangible, physical ways such as through home cooked soups, handmade sweaters, way-too-competitive games of crib, enthusiastic attendance at my sporting events (with her little dog Tuffy in tow, a tiny poodle with curly white hair who looked just like her), tender advice, and warm, ample hugs.  But even more importantly she offered to me the most valuable thing in all the Earth: love.

Now at 101, there are no more soups or sweaters or enthusiastic cheering. She cannot give me advice about life, even though sometimes I yearn deeply to hear her perspective on a problem I’m facing.  Dementia has stolen all that.
But dementia, while a worthy adversary, hasn’t stolen everything.

Far more important than the pots of homemade soup (the recipes of which are stored in my heart anyways),  is her love, which remains unchanged. In fact, she brims with love.

 

Sunday night she kept kissing my hand and exclaiming things like “Jennifer, I just love you so much!” or “I’ve loved you from the first hour of your life!”

Sometimes my life can have pretty big challenges, but how can I ever complain when I’ve known love like that in my life?

Having experienced the transforming power of love in my own life challenges me to prioritize love towards those God brings across my path.

That sounds good on paper, but unfortunately, at various times in my life I’ve been pretty hit and miss with that.  Words come easily to me, and I cringe sometimes when I think back over the years of my life to times I’ve used hurtful, creatively cutting words that may have wounded others. I can tell myself that the other person deserved it because they were being hurtful first- but that is an excuse.

Because the truth is simple:  when love is shared, people stand tall. When love is absent, spirits crumple.

Grandma Horne has also taught me about love shown in the form of forgiveness when hurt.

Many, many years ago, I was a minor party in an event that caused my grandma an afternoon of pain and embarrassment.  I regret it to this day.

However, my Grandmother’s response to the situation became a great teacher to me. She never once wavered in her love for me, didn’t hold it against me, and continued on treating me with the same gentleness and care she always had.  She never made me feel less than because I hadn’t taken a different course of action that day.

It is a pathway that I want to follow in loving others who have caused me pain.

However, it certainly isn’t easy.  Long, long, long ago, someone hurt me in a way that caused me such great pain that all these years later I still feel the aftershocks in my daily life.  An area I’d like to grow in is to find a way to love that person despite their actions.

Because, love means opening our hearts to another, even when they have hurt us.

However, let me clarify that love doesn’t mean not setting boundaries or being cautious.  It doesn’t mean allowing someone to cause continual abuse or hurt or pain in our lives.

Sometimes the most powerful way to love someone is with an emphatic, very firm: “NO.” Sometimes love means making known what that person did in the light of day, so that they cannot perpetrate harm towards another.  Love doesn’t mean allowing ourselves to continue to be a victim.

Love does mean genuinely, in our heart of hearts, truly wanting the best for another person’s life.  Of wanting successes and blessings and joy and peace and happiness to fill the other person’s life and heart. Of being gentle and tender in spirit towards that person.

My Grandma’s love, as well as love I experienced from others such as  Eric and my parents, has been a healing balm to my  spirit.  It helped me to grow into a woman today who has a heart and desire to genuinely love others.  I know what it is like to hurt deeply, and so I want to be someone that never causes pain in another like that. I want to be a force of peace and joy and love in others’ lives.

Unfortunately, anyone who has lived on this earth for more than a short period of time has known hurt at some point.  It is, terribly, a painful reality of living- and that means that there are a lot of wounded people walking around with pasted on smiles on their faces that hide bleeding hearts.

And sometimes the result of a bleeding heart is a person who isn’t gentle.  Which is where in the past I’d jump in with my own caustic words.  But where from now on I hope that I instead seen an opportunity to bring gentleness and love to someone who might be facing things I don’t even know about.

One thing I truly believe is that all of us, no matter our stories or backgrounds or life experiences, truly desires to be deeply loved. And when we receive love, we are changed forever.

Never, never, never underestimate the transforming power that love can have on those around you.

Love can help heal a multitude of broken hearts, and love is what changes our world for the better.

Love really is the most important thing in all the Earth.

 

 

 

 

The field trip

There is a little field in the midst of the forest, a five-minute walk from my house. I used to walk often to this field,  at least a few times per week if not daily. If I needed a break from life I’d head this way- sometimes early morning, sometimes mid day,  sometimes even late at night, admiring the moon as She peeked through the tall trees.

This is the field where Sam has spent the last four years building a log fort, perfecting it more each year. We took our family Christmas photos here in the field a couple years in a row, and shared countless picnics here too.

Sam’s fort, built over several summers

I can’t tell you how many times over the last 16 months that I’ve missed this field, have mourned the loss of being able to dart out my front door and walk through my friend, the forest, to this beautiful little spot.  Of seeing it changing through the seasons.

It is technically accessible by my power wheelchair (not my manual chair)….but it isn’t easy. Although I could once walk here in five minutes flat, practically with my eyes closed, the wheelchair ride is a longer one, in large part because the wheelchair can’t cut through the secret forest pathways I used to take to the field. I have to circle the neighbourhood and go through several streets to reach it. The length of the ride is longer than my typical riding endurance, and it isn’t a smooth ride.

It involves riding the chair along a busy street, down a  big hill, up another hill, and then navigating over a hard ledge to go from the pavement onto a gravel forest path. Then it is a bumpy ride down a jagged, slightly sideways slanted dirt path in the forest that, with a little rain, can turn into muddy hazards for wheelchair wheels.

I haven’t even attempted to make it to the forest’s edge since last autumn, and haven’t been back all the way into the field since I could still walk.

But….today is a beautiful day in May and more than ever my spirit needed to be in the field today.  So I got Eric to get Sophie (as I’ve named my power chair) out of the garage before he went to work this morning.  Then, I gathered my courage this afternoon, clambered onto Sophie,  and road off towards the field.

The marsh is beyond these trees

Several times I almost turned back. At one point I got terribly stuck in the mud. That was after I had ridden 2 FT off the trail to look at my favourite marsh that appears each spring in a hollowed out spot in the trees, a genesis spot for new life. Sure enough, I did get a good look at the marsh as the sun sparkled over it, but then I could not get back on the trail! Back and forth, I forced Sophie’s joystick…. to no avail: the wheels kept spinning in thick mud. What to do?

You sure realize in a moment like that just how vulnerable a position it is to be a person who can’t  walk! I was imagining being stuck in that muddy spot for hours until Eric finished work and could come rescue me! However, I gave the joystick one last try…and fortunately, somehow the chair twisted out of the thick mud!

As I approached the final hill, a small hill that nonetheless felt like Mount Everest, with the field in sight, an older man walking with his 3-legged dog asked me if I really thought my chair could make it down the hill and through all the mud.

I looked and it was muddy….but not as muddy as the mud I’d just gotten out of! It’s amazing how empowering it is to have extracted oneself from a muddy situation!

“I don’t know but I sure hope so!” I wrote back on my writing board with a wide grin on my face.   Then I zoomed down that hill with nary a problem!

And…..I made it into the field! I got myself off Sophie and onto a raised wood platform at the field’s end.  Here I sit now, penning this story on my phone.

Beside me, as I soak up the sun like a contented old tortoise, stands a big beautiful tree. It is the only tree in the field that bursts into flowered bloom each spring. It is Loveliness herself, this beautifully blooming white tree, bedecked like an early spring bride.

I still have to ride home, and I know I’ll be paying for this ride tonight……but it is well worth it.

Worth it because some of the most beautiful, meaningful things in life come with a cost. The cost can be high, but there is no price too high for living life fully and well.

And so, as I sit here outside in my favourite field, enjoying the sun on a May afternoon, listening to chickadees sing, watching dogs frolic through the field, and seeing the trees wave in the gentle breeze, my heart bows down and says, “thank you.”

 

Don’t feel sorry for a tree: the choice to grow upwards in hard times

“I feel sorry for trees,” I mused to my husband Eric some months ago.  We were sitting outside together on our back deck under the big old pine tree I love.  A cool, late autumn wind was whipping through the nearly barren branches of the apple trees across our yard.

“While the rest of the world moves around where it wants to go, experiencing new sensory delights and interacting at will, trees spend their entire lives standing in one spot,” I continued. “How boring it must be to never have a change in viewpoint, to always experience the same location over and over.”

Eric looked over at me with compassion.  He knew the heart of my comment wasn’t really about trees.  It was about me. About what it is like to go from being an able-bodied person who could easily move wherever I wanted to go to one for whom mobility is a challenge.

About requiring physical assistance to leave my own home (ie to carry my wheelchair down our front steps and lift it into our van), meaning that I now spend the majority of my days inside our home.

I do get out a little: now that it is spring, I can get myself to a chair on my front lawn to visit with neighbourhood passerbyers,  And, on evenings and weekends when Eric isn’t working, he and I do take the kids on adventures to restaurants or parks. My parents are also great about driving me to needed medical appointments during the week.

But it is a far cry from my old life of independence and mobility. Truly, losing the ability to just dash out my front door whenever I want, and spending a lot of time in the same continuous physical environment (my home) has been one of the hardest things I’ve ever faced, harder than losing the ability to walk or easily speak (I can still speak at little at times).

And so, I felt like I could relate to a tree that spends its life rooted in one spot while the rest of the world moves on by.

Eric’s next words startled me.  “Of course trees move,” he said quietly. “However, instead of moving across the ground like animals do, trees grow in an upward direction.”
The profound simplicity of Eric’s word’s stunned my spirit.  He was right.  From the earliest moments when a seed drops into the ground, trees (and all plants) are in a constant, vibrant state of motion.  A true, upward dance of life.
In fact, it is one of the greatest miracles I’ve ever witnessed, to push a tiny seed into naked dirt and then over time to watch it grow into a beautiful, strong plant. A tree that reaches towards the Heavens.

From the moment that plant begins its life until it dies, it grows.  Upwards.  Towards the sun. Towards the sky.  Towards Life Itself.

 And sometimes, when the tree is big and strong, it nourishes the lives of others. Not just through its fruit, but when a mama bird chooses to build her nest within it’s safe boughs.

In a flash, I realized that the same can be true in my life as well.  Even though I cannot easily move around and no longer have the physical abilities I once had, I can choose to grow in an upwards direction.  I can continue to grow in spirit and heart and love and compassion.

And it doesn’t just apply to my life:  the same is true for every person on earth. For you as well as for me. No matter where one is  in his or her life or what obstacles one is facing,  upward growth is always a choice.

Not everyone’s situation is the same as mine: most people can easily leave
their homes and go to the places they want to go.  However, each of us will face times in our lives where we are not where we would be if we had the choice.  The challenge is to find the way to grow upwards, like a tree, even during those situations when moving forward is not an option.

It could be that your obstacle is a frustrating, unfulfilling job that doesn’t seem to be moving you forward in the direction of your dreams.

Or maybe you are at home with a cranky toddler, cleaning up toys and messes and spills day after day that never seem to end.  Maybe you are in a relationship that is struggling. Or maybe you are not in a relationship at all but wish you were.
Maybe your once noisy home is now too quiet because the kids have grown and moved off to start their own lives and the partner you envisioned loving forever and growing old with is no longer here.
Or maybe you sometimes wonder if you are doing enough…if you are enough.  That is something I worry about frequently, particularly since I’m Iiving a life so vastly different than the one I envisioned.

However, Eric’s words encouraged me to grow my life from the ground up. Starting from where I’m at and stretching my spirit towards the sky.

Even though I can’t drive on out to coffee shops on my own, I’ve made a point the past few months of opening up my home to invite friends, acquaintances, and neighbours over for tea.  I’ve opened my door and heart to people both younger than me and older than me, people from various backgrounds and life circumstances vastly different than my own.  I’ve gotten to know and love some really neat people who I may otherwise not have had the opportunity to build relationships with.
I stumbled across a letter writing website that asks for letters of love and encouragement to be sent to folks all across the world experiencing hardships.  Somehow, when I sit down to pen a letter to someone facing hard times, my own problems are put into perspective.

When I have a bad day, sometimes I still look out the window at the world passing by and cry.  But other days, more and more, I’m able to remind myself that hardships are a part of life.  We can either let them hold us back and break us, or we can let them be springboards to upward growth.  Every obstacle can be a seed we plant in the ground that will grow into a strong tree that grows upwards towards the sky.

The choice is always ours to grow wherever we are. To find ways to live and love and laugh and smile through the hardships, to give deeply to those around us.  To dance through life like a tree, growing ever upward towards the beautiful sky.

 

 

 

What matters most

My family came over for Sunday Supper the other night, a tradition started years ago when I was small and we’d all pile in the car and drive over to my Grandma’s house.

Family Supper circa 1984

 

Some things have changed over the years, most notably that the meals are no longer held at Grandma’s house, but mine.

And also that the hearty meat- and- vegetables- and- potatoes- and apple pie types of meals Grandma would always cook for Sunday Supper have been replaced by either takeout or a potluck where everyone contributes something.

I find myself yearning to be able to cook  big meals like she did, but standing long enough at the stove to cook an elaborate meal for a large group is an ability I lost 16 months ago, along with so many other things I once saw as key to a good life, like being able to walk and drive.

It isn’t easy, but this situation is teaching me to cherish and celebrate what matters most in life.

With these Sunday Suppers, what matters most is not the elaborateness (or lack thereof)  of the food we eat, but that we are amongst some of the people we most love in all the world.

After supper had ended this past Sunday night, we finished up the evening with a little walk and roll down the street.  Our family parade was made up of two of us rolling along in wheelchairs, one rolling on a longboard and the rest walking along on foot. While I wish so badly that I could have been one of the walkers, what mattered most was being outside in the early spring evening, feeling the sun’s warmth as she gently kissed our cheeks.

I think Grandma, aged 101, had the biggest smile of all as she sailed down the sidewalk (pushed carefully by Eric) with the evening sun on her face. It made all of us smile to see her so happy.

I strongly believe that one of the things that matters most is fully living the gift of life God has granted each of us.  However, between my physical disabilities and the other special needs some in my family live with,  sometimes this feels as hard as trying to swim against a deep current.

I’m slowly discovering that a good life can be built when one deliberately seeks out creative ways to approach the challenges, with the goal of living life as much as possible in the face of disability and struggle.

It’s an approach my family, in particular my parents and my aunt, have taken with my Grandmother. Quite frail, she lives in a nursing home for people with severe dementia and high physical needs.  On the surface, it might not make sense to take her out on grand little adventures.  None of the other residents, many in a physically healthier state than her, have left the building in months.

However, the smile on her face when she shares a Sunday Supper with us as she has done for decades reminds us that being together is truly what matters most.  She is so very fragile, and yet that is all the more reason to sprinkle her life with fun little trips out of the nursing home.  Even though she doesn’t remember these outings five minutes after they end, in the moment while she is doing them she has a blast. And spending time loving on her is a way to honour her for the love she showered on all of us all our lives.

I believe it is good for my kids to be around someone whose spirit has accumulated the wisdom that comes from a life that has spanned everything from the horse-and-wagon days to the computer age. Even if she is not able to communicate that wisdom to them verbally, her wisdom shines from the gentleness of her spirit; the easy joy in her smile;  the softness of her wrinkled hands.
To me, she is a great teacher, probably the most impactful one I’ll ever meet in all my life.
 She and I never really had big conversations over the years where we sat down and discussed the meaning of life or other important topics. Instead, she taught me about what matters most through the tenderness of her hugs, her delight in the small things, and the deliciousness of the soups and cookies she was always baking whenever I would go to her home (which was multiple times per week for all the years of my childhood).
Eric and Grandma sailing through an early spring evening.

Now, in her fragile state, she teaches me still about what matters most. Not so much through her actions anymore: there are no more home baked cookies from her stove, no more slightly lopsided sweaters knitted with the greatest of love.

However, what matters most remains in plenty: her love for her family and her mischevious and spunky personality.
Seeing her live with joy and contentedness even in the face of her challenges encourages me in the face of my own struggles to not just persevere, but to smile deeply and to find creative ways to have fun and live well.
Beautiful Samantha

It inspires me with my kids to try to make my focus on their abilities and all the things they can do.   And to keep striving for solutions so they can participate as fully as possible in life’s joys and activities.

And it reminds me that for all of us, our abilities or disabilities are but just a fraction of who we are as unique individuals with things to contribute and with deep, loving connections to establish with those around us.
And so, I gather my family close, draw my wheelchair close to grandma’s, and gently squeeze her wrinkled hand in mine.  And then we all walk and roll off into the evening sun, cherishing together what matters most.
.

When life doesn’t go as planned

The late spring sunshine was streaming through an open window in the top room of my Grandmother’s small house on the quiet evening that I planned out my entire life.  Using my best penmanship, my thirteen-year-old self carefully crafted goal after goal and plan after plan, each more ambitious and exciting than the last.

By the time dusk had fallen, I had decided on everything from the college I would eventually attend, to the year I would get married, to the awesome career I would have as a traveling nurse in Africa, to the names of my future six children… to a whole lot more.

I didn’t imagine anything could get in my way.  Then, of course, life happened.
In the years that have passed since that quiet spring evening, not one of my plans has come to fruition in exactly the way I envisioned.  Some have come partially true- I don’t have six children, but I do have two.  I did go to university, but not the one I had expected to attend.  Other plans were completely off base- I certainly did not become a traveling nurse, nor have I been to Africa.

However, what is most different in my life are the things I did not envision on that quiet evening when I was thirteen and dreaming big dreams upon even bigger dreams.

While life has included so much good, I didn’t envision the challenges and hardships my life would also include.  I certainly never in my wildest dreams, saw myself getting into a car accident at the age of 19, an accident that would send me down a journey of progressive disability. I never expected that I would one day have to make friends with a wheelchair and a speaking device, nor that I would have to adapt my vision of who I am even when I physically cannot do all the things that others can easily do.  Things like walk or talk for more than short conversations.

It’s funny how goals can be like that.  It’s easy to do what I did as a thirteen-year-old and set out ambitious goals and life plans for the amazing and good parts of life.

But what do you do when the unexpected hits and that unexpected includes tragedy or loss or pain?

When you find your shaking self in a crumpled, smashed car with windshield glass shattered around you?  Or when you try with all your might, but you don’t get into the college program you hoped for or the job you spent years working towards?  Or when you have your perfect child, and that perfect child comes with a life-changing diagnosis such as autism or down syndrome or cancer?  Or when late one night you find yourself in a sterile hospital holding the hand of your loved one as with every breath they slip closer to eternity?

What do you do when the big plans you created for your life also are tempered with struggle?

Because the thing is, life is two-fold.  There are the blessings, but there are also the challenges that we all face at some points in our lives.

For me, going through my own difficult circumstances has taught me some big lessons.  I’ve learned that life is what you make of it, and that joy is always an option.  That we can choose to let the painful parts of our lives be like a pumice stone that softens our hearts and opens our spirits to love for others.  That we can allow love to permeate our hearts.

When we allow our hearts to break open and spill love to those around us, even when facing our own challenges or hurts, we discover life’s greatest gift, which is to be a force for positive in the life of another.
I used to be someone who always wanted only the best for my life.  Life has taught me that “the best is an illusion.” But that it is in the imperfections of life that we truly live.  It is in the struggles of life that we grow as humans and it is in the twisted pathways that find out who we really are. It is in both the joys and the pains of life that we most fully live.

On kindness

The early afternoon summer sun was reflecting off the bright blue water as my pre-adolescent self,  all scrawniness and gangly limbs, burst from the pool change room in a purple- dotted bathing suit.

I was a ten-year-old juxtaposition:  a little girl whose eyes were sparkling in anticipation of a fun afternoon in my friend’s grandparents’ pool, and yet at the same time also a child whose spirit had taken to hunching, an attempt to self-protect in a world I already knew could be confusing and sometimes painful.

My friend’s mother, Beth, stopped me right as I reached the water’s edge.

“You are so beautiful,” Beth said, smiling down at me. She touched my shoulder gently before sending me off into the pool to play.

It was a momentary, split-second interaction, and yet I stored her kindness in my heart where it still sits on this day many many years later.

Her simple words accompanied me through the not- always- easy growing up years that followed that sweet, innocent summer day. Years where I was the uncoordinated, frizzy haired kid who wasn’t quite sure of herself and often felt alone.

The balm of her words, along with additional encouragement from others, stayed with me as more years passed and I finally began to grow out of being an awkward, nervous teen and into the happy woman I am today.

It inspired in me a desire to pass along kindness to those I encounter and to do my small part to be an encourager of others.

I once somewhere read something to the effect of that we never truly know what the people we encounter each day are facing, and so we should always endeavor to tread gently.

The tracks we leave as we walk through life can be ones of hopelessness or hope in the lives and spirits of others.

It doesn’t take having a highly accomplished career or a ton of money or an amazing personality: having our hearts open and attuned to the small needs of others around us can change lives forever. I think this is one of the miracles of our world.

 

“Not all of us can do great things. But we can do small things with great love.” ― Mother Teresa

Jenna’s Second Cafe Review: Route 99 Family Diner

Restaurant: Route 99 Family Diner

Address: 8820-99 Street, Edmonton

Rating: 4.8/5

Date Visited: February 15, 2017

Meal: A Daddy-Daughter Lunch Date   

Reviewers:  Dad (aka Tom Schentag) and Daughter (aka Jenna Hoff)   

“We just love our regulars,” Jessica, the young waitress at Route 99, confided as I paid my (reasonably priced) bill.

“In the evenings when regulars come in, I sit down to visit and have coffee with them, and marvel at how their children have grown since I held them as tiny babies. Often the owner comes out from the back to say hello too.”

Indeed, it was the friendly atmosphere that really stood out to my dad and me when we had lunch at this family owned (by two brothers) diner not far from my home. (So close in fact that my dad was able to wheel me on down 99th street to it, forgoing all the hassle of packing my wheelchair into our van).

The one issue was mild difficulty with wheelchair accessibility (door slightly narrow; no automatic button to open door; some ice obstructing ramp out of parking lot etc). It’s amazing and humbling to realize how things I never used to think twice about (ie the width of a door) now are such a big deal in my life.

However, from the moment we wheeled on in, we were embraced into a world of old-time diner charm, from the cherry red booth seats, to the fun and eclectic decor (which included a bright yellow traffic light; funky signs,  multiple Marilyn Monroe posters; a
holographic Elvis; a  giant silver airplane wing and much much more). This would be the perfect place to play I-Spy.

The food was so delicious (ample portions!), the staff so nice, and the cool decor so fun that it was a wonderful experience.

My dad and I gave it a 4.8/5 rating.

If you’re looking for a fun diner experience for your family I would definitely recommend this
place.

As I left the diner, I told the waitress to add me to her list of regulars.

 

 

 

Want to join me on my next cafe review?  Let me know in the comments and we’ll plan a date 🙂

Do you see a woman or a wheelchair?

I’m still shuddering from a conversation I had this week.

Riding my power chair Sophie last spring

 

“When people see you, they see your wheelchair and not you as a woman,” an acquaintance, who I’d recently met and who does not have disabilities herself, said to me. “Around you, people must feel awkward, uncomfortable, and will try to give you a wide berth. They will avoid eye contact with you and hurry on by as if you are invisible……

 

My communication device

Given you communicate with a writing board, they will also assume you are……” her voice trailed off as she twirled her finger beside her head to give the universally disrespectful symbol for someone who has cognitive disabilities or mental health struggles. Her expression conveyed this perception would be most terrible.

While the acquaintance was full of righteous anger on my behalf against the injustices she assumed people must feel and perpetrate towards me, her words hurt.  In my immediate family, two people have cognitive disabilities, my beloved grandma has dementia, and others have fought brave battles against mental health conditions. These are the people I most love in this world.

I’m still adjusting to what it means to have had my own disabilities become much more visible over the past year, and so her words also left me shaken, doubting of self, and confused about the motives of others.
One of the things I value most in this world is the ability to connect with people and form genuine, warm relationships with those God has brought across my path and into my life. It hurts my heart to think that something as superficial as a piece of metal on wheels that carts me around could get in the way of that.

Fortunately, as I look back over the past year, I can recall very few incidents of judgment, compared to time after time after time of genuine kindness, acceptance, and love from the people in my life.  I have some great people in my life who have shown me acceptance based on who I am.

I’m quirky, I admit it.

Strangers sometimes do take a while to figure out how to relate to and communicate with me, but that could be just as much from the fact that I wheel to the beat of my own drummer.  More often than not, after a few moments of conversing with someone new, I sense that the foundational blocks of a relationship have begun construction, in much the way it was in the days before my disabilities were visible and easily apparent.

While I am grateful that my own experiences have largely been positive and contrary to my acquaintance’s negative assumptions, it was an eye-opener to me.  In rapid succession, I then stumbled across two statements this week that further opened my eyes and showed me how education is still needed.

The first was  by a well-known contemplative author whose work I have previously enjoyed:

People with disabilities “are considered marginal in our society. They don’t make money; they are not productive and all of that, but they are the real poor. Jesus said, ‘Blessed are the poor.’ Jesus doesn’t say, ‘Blessed are those who care for the poor.’ Jesus doesn’t say, ‘Blessed are those who help the poor.’ He says, ‘Blessed are the poor.’ That means the blessing of God is right there in their vulnerability, in their weakness, and that is what I experience.”- Henri Nouwen

When we group society into one collective thought group that considers people with disabilities as marginal, we close the door to free thought as well as grace-filled acceptance of people despite any abilities or disabilities, weaknesses or strengths they may have to offer as a person.  We begin to think in the opposite manner from everyone belonging and having something to offer (beyond offering a “blessing” to others).

This quote makes stigmatizing assumptions that a person with a disability is “less than” anyone else and has less to contribute. I don’t know anyone who wants to be seen as marginal or “the poor.”

Further, to state that people with disabilities do not make money or be otherwise “productive” is certainly not the case for all people who have disabilities.  There are plenty of people who contribute highly in life, regardless of their disability. Many people are not poor financially, nor lacking in social connections. This is the expectation I have for both of my kids, who have plenty of abilities to contribute to society as a whole.

Likewise, many people with disabilities are not able to work or earn money.  However, I’ve never met a person, disabled or otherwise, who didn’t contribute in some way to the world around them.  I used to work in group homes and schools with individuals with extremely complex physical and cognitive disabilities and some of these people contributed to my life in such meaningful ways, that I still think of them with regularity many years later.
From the bonds we form with each other, to the love in our hearts, to the fact that as living and breathing humans we reflect a sacred image through our very humanity… we all have a place in the world.

In terms of blessings…. I do hope God’s blessing is on me, but I want it not be thought automatically so if the only criteria is that I have disabilities. I’d prefer someone dislike me for my stubbornness or the paralyzing shyness that can strike at the most inopportune of times than like me because the fact that I use a wheelchair is seen as a marginalized weakness that brings blessings.

The second quote, by Michael W. Higgins, does the opposite of “marginalizing.”

“The people who are disabled are our reward.  And they remind us of the deeper truths, the truths that sustain us as a culture, humanize and enoble us…..Those who are intellectually ad physically challenged have no time for illusions; they force us to confront the reality, not the false dreamscape of humanness.  They are the true sentinels of our larger hope…

….There is something very particular in their kindness, in their afflications…… a great and liberating mystery to touch the bodies of of those who couldnt communicate verbally.  In fact it was unnecessary to do so; their bodies proclaimed ‘love me.’  Such a communication arose naturally from their very depths of who they are- they are their bodies, broken, rutprued, fragile, incomplete.  But theirs are wrapped in love…..The tenderness of the disabled heals us, breaks us free……”

On the surface, this may sound like kindness.  But delve into the meaning and it becomes clear that to view a person as a reward to “us” because of “their” innate humanity or kindness in affliction is to create an “us versus other” world. To see a person as a sentinels of “our larger hope” solely because they have a disability is to patronizingly give that person a wide berth that prevents seeing him or her as a human being.

It takes courage sometimes to reach out to each other, despite any differences we have.
My own experience being in a wheelchair has opened my eyes to the fact that it is not our differences that separate one from another, but our fear of those differences.

However, when we look into our hearts, we discover we’re all not so different after all.   Inside of every heart is a desire to be seen as we are, to be accepted for who we are, to know that we matter, and to be deeply loved.

I’d love to hear YOUR thoughts!

Why we said yes

The question that would change my family’s lives forever came completely out of the blue on a hot summer afternoon last August.

I was stuck at home, remembering what it felt like to splash in an outdoor pool or dig in my garden or pick saskatoon berries in my favourite, hard-to-find haunts throughout Mill Creek ravine.  Longing for the activities that had been a staple of my summers for every year until this one.

I was grappling, as I still do on a daily basis, with what it means to live life with a spirit that craves adventure and excitement, but lives in a body hampered by physical disabilities.  Wondering what my purpose really is and how I can contribute to the lives of others when the dreams I dream seem so far out of reach.

Then a text appeared on my phone.  Alerting me that a situation had arisen for our daughter’s older brother, asking if my family would be willing to have him move into
our home.  We had one day or less to give our decision. If we said yes, he’d arrive the following day to spend the weekend, would go to a summer camp for the next week, and move in for good 10 days later.
Shaking, I texted Eric and we began to discuss.
On the surface, it made absolutely little sense.  Eric and I are both planners and deliberate decision makers.  Prior to adopting our daughter in 2010, we had spent a year jumping through hoops such as a rigorous home study, an ocean of paperwork, intense meetings with social workers, a two-month class about parenting young children who have experienced trauma, financial and medical evaluations, and more.
Even after we had been tentatively matched with our daughter, it took another three more months of meetings with her own social worker, her school officials, and her foster parents before “Welcome Home Sweet Home Day” happened.  That day, when our then nine-year-old daughter joined the family, was one of the best of my life.

We had been well prepared for that new adventure. However, for planners like us to have less than one day’s notice to give a decision as to whether to suddenly open our home, family, and hearts to become fulltime caregivers to an adult with disabilities? At a time when my own disabilities were (and are) in a challenging place?  That was like stepping into the great unknown!

So why did we say yes?

The first reason was we knew this young man very well, knew he was an absolute delight and quite special.  Since her adoption, we had made it a priority to have our daughter and her brother maintain their sibling bond, having him over for visits every month or so for over six years. He had become very dear to us over the years.  Had we not had this close bond already established, it would have been much harder to make a sudden decision.

First visit, 2010

We also knew we already had a solid family life to offer the young man. When we adopted our daughter, we had to learn how to be in parental roles, as well as how to establish family routines such as bedtime story reading, kid-friendly suppers, teacher meetings, and appropriate discipline and parental guidance.  But by this stage of the game, all that was already part of our lives.  It wouldn’t be a huge leap for us to go from one to two young people in our nest.

But those were the reasons why it could work in theory for us to embrace this sudden new venture; they weren’t the reasons why our hearts said yes.
The biggest heart reason was love.  In a world where people often greet each other with suspicion, where boundaries can be sky high, where it is easy toclose ranks with one’s “own”, loving with an open heart can be a foreign concept.

And yet, love is what we all crave.  Some of us hide it with better masks than others, but deep down, in all of our hearts is a cry for acceptance.  To belong.  To matter. To be unconditionally loved. Love is what heals even the most painful of wounds.

Both Eric and I have been recipients of radical love. Both of us have faced challenging, traumatic experiences and losses in our lifetimes, and both of us have been graced by the accepting, healing love of others.  We have experienced first hand in our own hearts how instrumental sacrificial love has been in helping us grow into the people we are today.

And so we said yes.

It has been one of the best decisions we have made as a family.  It hasn’t always been easy, but it has been a surprisingly smooth transition.  This young man waltzed into our lives and set up shop in our hearts.  It has been a true joy to have him here with us, and I will be forever thankful for the privilege and opportunity of caring for him.

I’ve learned from this situation that even though I physically cannot do the things I long to do, even though my disabilities prevent me from experiencing aspects of life I yearn for,  that I can still be part of the most important aspect of life. And that is love.

To love and be loved…. that is what life is about.

Jenna’s Cafe Review: Blue Chair Cafe

Welcome to my first Cafe Review!

When seeking a nice restaurant for brunch with my family this weekend, I put a request on Facebook for recommendations close to home.  I was so intrigued by the many unique and interesting cafes suggested, I decided to make a New Years resolution to visit each of them over the coming months.

I thought you might like to join me on this adventure, so in between my regular Days of Grace posts, I’ll be writing about my little cafe trips.  Or better yet, come along in person on the next cafe trip!

 

The Blue Chair Cafe: 9624 76 ave, Edmonton

Rating: 4.3/5

Date Visited: January 7, 2017

Meal: Brunch                        

Other: Not to be confused with the Blue Plate Diner                                                            

Don’t you just love places that turn out to be much more than their initial appearance indicates?  Located in a nondescript strip mall, the little cafe we went to yesterday was as great a place as the story that inspired its name.  

As the friendly waitress conveyed the story to me, some time ago a man was traveling in Thailand when he came across a cafe with tiny blue chairs. He so loved this little cafe, that when he returned to Canada his own little Blue Chair Cafe was born.

The highlight of visiting the Blue Chair cafe was its welcoming atmosphere and funky decor. A good sized stage (with blue lights shaped like a chair) is set up for live music nights. According to the waitress, the music genre is often blues, jazz, and folk.

 

 

 

Smoked salmon benny

 

The food, advertised as “hand-
crafted from scratch,” was delicious, and garnered ratings between 3.6 and 5 by my food loving crew (this time made up of Eric, Joe, Sam, Granny Annie, and me).

 

 

Huevos rancheros

From the moment I took my first bite of huevos rancheros, the flavour transported me back to a long-ago trip to Costa Rica.  For a moment, I remembered the girl I once was, who worked all year at a grocery store to save money for a service trip after my grade 11 year.

It’s had to imagine myself as the same girl who once was strong enough to trek through a mountainous rainforest, mud coming up past my boots, rain streaking my whole body, adventure thrilling my soul. Sometimes, as I sit in my wheelchair,  I wonder if She truly is gone forever.

Monkey in Costa Rican rainforest

However,  adventure comes in all forms. While I may not be able to hop a plane and fly to an exotic locale anymore, as 2017 dawns my goal is to seek out adventurous living close to home.  Perhaps this New Years Cafe resolution is a small way to start.

 

Back to the Blue Chair,  my one complaint was with wheelchair accessibility.  While the restaurant itself was wonderfully accessible, getting inside was a challenge. The parking lot was not snow blown, meaning it was hard to navigate the wheelchair.  Even worse, we could not find a ramp from the parking lot to the sidewalk leading into the cafe, just a sharp curb.
However, once I made it inside, it really was a nice experience.  As Eric commented, “it’s definitely a place visit again.”

Thanks for reading my first cafe review!  Do you have a favourite cafe? I’d love to hear about it in the comments!   Also, please tell me if you’d like to come along on the next cafe review adventure.  The more the merrier!